The Super Suit
I believe every parent is constantly searching for the best for their child, no matter what it is. Special needs parents should have a PhD in cure research as we spend most of our “spare” time looking for anything that will help our children that little bit more.
Among my many hours of research, I stumbled across the Mollii Suit. An odd looking tight, black suit with a computer on the front and little white wires. I was curious what this set up was meant to achieve but it seemed popular with cerebral palsy patients so I figured it was worth looking into.
The Mollii Suit was first developed in Sweden by Inerventions and has been used in many therapy centres across Europe since 2012. The suit was only introduced in Australia in 2017 so it is still a new form of intervention here.
The main concept of the suit is to reduce spasticity and awaken unused muscles or retraining the brain by way of electrotherapy. The Mollii Suit is individually adapted so it can target specific muscles for each patient. The control unit which easily detaches from the suit sends electrical signals to the nervous system via electrodes embedded in the suit.
Harlie was fortunate enough to be invited for a free trial of the suit. My expectations were low as it was only a 1 hour trial. In my experience, you can’t see life changing results in 1 hour of therapy. I was, however, assured I would see small changes by the end of the trial. I was sceptical. With the suit on and individually programmed, Harlie sat on the floor and played with dolls. After 15 minutes of wearing the suit, the therapist asked Harlie to lay down so he could check the progress on her left arm as she still has some spasticity in her shoulder inhibiting her from bringing her arm completely over her head while keeping it straight. He moved her arm quite freely but I still wasn’t convinced. I asked if I could try moving her arm myself. Oh. My. Goodness. As I moved her arm above her head, I burst into tears. Her arm felt 100% free of spasticity. It felt very much like her legs did straight after SDR surgery.
You can follow Harlie’s story on www.harlierussellfoundation.org/ or through Facebook: Harlie Russell Foundation